My father-daughter dance 

A month before my wedding my dad approached me and said he wanted to do one of those father daughter dances where you break into an unexpected routine. Since I took dance when I was younger, I was quite comfortable with the idea but the thought of my dad having the time and skill set (Sorry Dad, I have only seen youf do one move your whole life and that is the imaginary hula hoop) got me anxious. But I put together a video for him of the song and moves and said if you can learn this before the day then we will do it. The only problem was he was too shy to practice in front of me. It wasn’t until the day before the wedding where I got to see the finished product and to my surprise he nailed it. Here is the video, we just got it this week! 

https://vimeo.com/182256081?utm_source=email&utm_medium=vimeo-cliptranscode-201504&utm_campaign=28749. 

Update: As far as my recovery, I have experienced a lot of fatigue and could probably sleep all day. This could be because I don’t really sleep in the night for some reason. With my sleeping all day, it is been difficult to put on the weight I need for chemo. So my dr decided he would add two more weeks to my “break” before starting chemo. In the next 4-5 weeks from now I should be starting chemo although I still don’t know what type and for how long…oh well c’est la vie! 

Home sweet home


On Thursday, August 18th, we frantically packed up the apartment hoping to get everything ready for our noon flight. I glanced at my phone and saw a text from my sister that read “you might be an Aunty today!” Between two flights from Boston to Winnipeg my family and I were in knots about how my sister was doing and what was going on. 

The week leading up to my surgery back in May, Heidi and Eric had an ultrasound and asked the nurse to write down the gender of the baby in a sealed envelope. Heidi and Eric refused to look inside the envelope, but instead, handed it to me when they got home. They told me they knew the next couple months might be tough for me but that it would be better knowing if I had a niece or a nephew to look forward to come August. Sure enough I opened it and it was blue…tough part would be keeping it to myself for so long (mostly successful with only one slip up! Ha Ha)

We landed In Winnipeg at 6:30 PM and were greeted by my in-laws. They drove us over to our house where they had not only painted our entire upstairs but did so much more than we could ask for. Several family members and friends had put in work and we even got new bathrooms and Paul got his office fixed up! At this point, we still had not heard any updates about my sister. Once everyone had left our house we got a call telling us the baby was here and ready to meet us. At 9:30 pm August 18th, Henry Sawatzky was born. Little Henry was so gracious in is his arrival, not only were we able to spend time with my husbands family who we missed so much, but we were able to be with Henry on the first day of his life and celebrate with him. God’s timing is impeccable. Welcome Henry, I have been waiting for your arrival for a long time. 

Homeward Bound

I can’t believe the day has finally come. I never thought it would. I remember at the start I couldn’t wrap my head around finishing 30 whole treatments in 6 weeks. It didn’t seem attainable and now the day is finally here. I feel very fortunate to share this moment with Paul, my Mom, my Dad, and our little yorkie, Ruby. But I know they aren’t the only ones here with me, as there are countless people back home who have awaited this day for as long as I have. Some are ringing their own bells at home for me today. I am so grateful for the support and thoughtfulness of others, both near and far. Although I will begin a new chapter that consists of chemo once I am home, it does not take away from the satisfaction of ringing this bell today! 

And with that it is time to pack up the apartment and be on our way home come Thursday. It is about time, my sister Heidi is pregnant and due any day now. There is never a dull moment, and there is no question that the arrival time of this little bundle will be in perfect timing! 

Meet Ruby


This is Ruby, the newest addition to our family. At 3 pounds, she is so sweet and has the best personality. We have wanted another dog for a while now and on my birthday, we took an uber to visit a yorkie breeder in Beverly, just outside of Boston. We fell in love with the little runt and decided we would get her. The apartment has been full but we love having her spunky self hopping around. Paul brings her to a lot of my appointments at the hospital and we share her cuddles with the staff and other patients.
Today marks one more week until we are home! It also marks one more week of Ruby being an only fur baby until she realizes she has a sister named Phara, a border collie who also doesn’t know there is a new addition to her family. Here is to hoping for a smooth and successful transition for us all next week!

I am also entering the last few days of my treatment and the side effects continue to be only minor, some fatigue and nausea but all manageable. Thank you to everyone who has continued to reach out and check on me. I can hear the bell ringing already! 

A Boston birthday bash 

July 21st marked my 25th birthday. It also marked my 12th radiation treatment andto my dismay, the day my hair would evidently begin to fall out. My brother lance came to Boston to visit us during my birthday week. I woke up, showered, and rushed over to the hospital for treatment like I do every week day. Paul usually walks me to every appointment and waits for me until I’m done. This time he told me lance would take me. I thought this was a good idea since he deserves a break (and we all know how important Pokemon GO is these days). After my treatment, I came out to the waiting room but couldn’t find my brother or Paul anywhere. Until I turned the corner to see a huge display of decorations, cupcakes, and coffee in the waiting room. I was slightly embarrassed but more grateful that they made such an effort to show me love. Nothing like “special treatment” on your birthday. 

Thank you to everyone who reached out to send me birthday wishes. It made my day! 

With Bells On

So far, I have completed 19/30 proton radiation treatments. They have been going relatively well, with a little bit of nausea and loss of appetite. Below is a picture of my “spaceship” for the summer. My treatments take only about an hour, where they spend most of the time lining me up so that the radiation beams enter the correct placement. My only job is to lay still and not move for the duration of the hour. The team that works with me plays music during the treatment, where Paul often asks them to play Justin Bieber much to my embarrassment. I also have been doing a dose of chemo every week on Tuesdays. Once I return to Winnipeg I will likely have to do 6 more months of chemo (once a month). But for now I continue on in this Boston adventure.

2016-07-06 12.42.28

On my last radiation treatment, I get to ring this bell. I am very excited for this day and can hardly wait. It will be very surreal once this chapter is closed. And with that another one will open!

 

2016-07-06 12.18.50

Boston for the Summer

I created this blog to keep my friends, family, and those who have shown interest in my journey updated while I have been so far away. Here is a brief rundown of my journey through the past little while. Brace yourself – it’s been a whirlwind!

December 2012, I met the love of my life, Paul Dueck, at the Asper School of Business. We dated for 3 years before getting married on January 30, 2016. We just received our wedding video this week and it couldn’t have come at a better time. Take a look at our wedding video, to see one of the best days of my life 🙂

https://vimeo.com/174839421my

 

Everything about our wedding was amazing, and we had a blast dancing with our friends and family at the beautiful Fairmont until they shut the party down. After the wedding we took off to Mexico for our honeymoon. When I returned to my job, much to my surprise, I was offered a new role as the Branch Administrator. After a couple weeks of careful consideration, I took the job, which ended up being one of the best decisions I ever made. I love my job and am blessed to work with incredible people.

Unfortunately, it wasn’t long in my new role before I started to experience lots of discomfort and unusual symptoms: severe neck pain, aches in my arms, and intermittent hearing and vision loss. On March 17th the symptoms were so bad that I didn’t think I could drive home from work, so I asked Paul to pick me up and take me to the Victoria Hospital to see if they would help me in the Emergency Room. The CT scan came back negative, and they sent me home telling me to keep an eye on the symptoms, that they thought were due to a minor car accident in a parking lot several months prior. Paul and I were frustrated by their prognosis and knew there had to be more to the story.

April continued and my symptoms grew progressively worse. The pain became unbearable, and some days I had to close my office door and lie down on the floor until the dizziness subsided. Up to this point I never missed an hour of work, and was also studying every evening for my Canadian Securities Course. On April 28th, I saw a great doctor in the ER that took time to do blood work and other tests, and scheduled an MRI for the next morning. After a day of waiting, I was told that they had found a brain tumor as big as a Christmas orange wedged between my brain stem and cerebellum.

The neurosurgeons told me that my symptoms were due to the fact that the tumor was pressing against my brain stem, and that they would need to remove it in a week (at Health Sciences, Winnipeg), before the symptoms worsened. Due to the location of the tumor, it was going to be a very challenging surgery, and they were going to have to be very careful to not damage the brain stem while attempting to remove all of the tumor. I was blessed to have a team of amazing neurosurgeons, and the surgery was a success, as they were able to remove the whole tumour. The doctors mentioned it surprisingly rolled away from the brainstem with ease.

We waited 3 weeks to get the pathology report back. Those 3 weeks were tough, as I recovered from surgery, and wondered if it had been cancerous. The report came back that the tumor was malignant, and was called Medulloblastoma; an aggressive tumor that would require further treatment (i.e., both radiation and chemotherapy) to make sure there were no cancer cells near the tumour site.

This kind of tumor is most commonly found in children, and very rarely in adults. CancerCare had only seen 24 cases in adults in the last 25 years. With such little data and recommended plans for adults, it was imperative for us to exhaust all our resources and find the best treatment plan. After long hours of careful research Mass General had come up with our family doctor as well as many colleagues we confided in. Mass General is one of about 13 hospitals in the United States that offer proton beam radiation therapy and 1 of 5 that treat my case. While the results of Proton Therapy do not differ from typical IMRT radiation (the type of radiation therapy that Canada uses), the side effects both long and short term are known to have more favourable outcomes.

It was a miracle that I was able to get in for treatment at Mass General so quickly, as one of the lead radiation oncologists at Mass General spent a lot of time talking with us, and pulled strings to get me in quickly. I require 30 radiation treatments (one each day Monday-Friday) that started on July 6th and finish around August 17th. On Tuesdays I also receive chemotherapy.

So here I am, living in an apartment for the summer with my husband, mom and and dad, just 40 feet from the hospital in downtown Boston. I never thought this would be my summer 2016, but I have been encouraged by the faith of my pastor, my family and friends and an amazing team of neurosurgeons and doctors along the way. Many of you reading have been praying for me and encouraging others to pray for me. For this I will be forever grateful and changed.