To chemo or not to chemo 

 

 

Sorry it has been so long since I last posted! I have now been home for 7 weeks. I wish I could say I’m back to myself but I am currently “recovering from my recovery” phase. I guess all that sleeping I was doing the first couple weeks caused me to lose a lot of muscle mass. I can barely walk without assistance. Every day I am believing I will be stronger. I asked my parents for their exercise bike and it now sits next to my bed. Whenever I muster enough strength I drag myself on it. It’s the safest way for me to gain muscle without worrying about collapsing if my legs give. I am also very anxious to get rid of the aching (neuropathy) that has shown up in my hands and feet.
Today I have an appointment with the doctors where they will tell me what their suggestion is with chemo. Last time I talked to them, they said I needed more time to recover. They also said that because I have neuropathy symptoms, they want to refrain from giving me 2/3 drugs (the chemo suggested is a 3 drug cocktail for Medullablastoma), because 2 of them often give neuropathy symptoms and we don’t want to make the problem worse. They would substitute the 2 drugs for something else, but they are concerned about how effective those substitutes would be. They have been discussing

this for the past two weeks so we should have an answer from them. Additionally, now that I can barely walk they may not see me fit for chemo at all, and to be honest, I might not feel comfortable giving myself chemo in this state.

But I pray that today I will know what is best for me after talking to the doctors and for a peace that surpasses all understanding as we make our decisions on chemo.

7 thoughts on “To chemo or not to chemo 

  1. Courtney…I have not met you but I am impressed how strong you & Paul have been! I love the scripture that says ” His strength is made perfect in my weakness so when I am weak I am strong!”
    Uncle Len & I have certainly experienced this same strength in our lives since he was diagnosed with multiple sclerosis in
    2007! One day at time becomes a reality when we experience illness in our body!

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  2. Our thoughts and prayers are with you dear Courtney, as you respond to yet more challenges and write about it with such elegant beauty which matches with the quiet beauty in your eyes. And with Paul & both your families, beside you all along the way. May the peace of Christ guide you as you make your decisions re whether “to chemo or not to chemo …” Love Auntie Leona & Uncle Peter.

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  3. Sorry to hear of your physical struggles since you have arrived home Courtney. May God strengthen you in the days and weeks ahead and may He give you clarity for decisions you have to make and then peace with your decisions. Stay strong in your mind and spirit and your physical energy will follow. PRAY ING for you Courtney

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  4. Hi Courtney & Paul..our thoughts & prayers have been with you soooo much, and now that you’re facing yet another decision whether you will go thru chemo or not, our prayers are especially with you!! We pray God’s peace & love will surround & comfort you in the days ahead. Lots of love Aunt Mary & Uncle Larry

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  5. Dear Courtney & Paul,
    You have been on our hearts so much and in our prayers. We gave been reading a devotional book and I wanted to share some thoughts on one of the readings. It is entitled “Put On the Garment of Praise”. I also love the scripture reading :
    Psalm 145.
    I will also share the verse:
    Isaiah 61:3 To grant those who mourn in Zion,
    Giving them a garland instead of ashes,
    The oil of gladness instead of mourning,
    The mantle of praise instead of a spirit of fainting.
    So they will be called oaks of righteousness,
    The planting of the Lord, that He may be glorified.
    Thanks for the update & we love your picture😊 Stay strong!
    We Love you,
    Uncle Allan & Aunt Bernice

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